No Going All Ninevite With Rubber Chickens

Good morning everyone. I know, it’s been a long time. The holidays guys…. Family, my Mom came with her boyfriend. He’s HILARIOUS!!! He fit in like she made him in a computer. He’s offensive, we’re offensive, it was beautiful. The man got us all inflatable dinosaur suits. He wins. Period. See, I got my kids rubber chickens in their stockings this year and since the youngest figured out that Santa is a historical character (Saint Nicholas), not the guy who’s been dolling out gifts each year, we had fun writing obscure “From” names on the labels that hinted toward what the gifts were that generally only made sense after they opened their gifts. For instance we had, “From: The Pools of Drowned things” and in it were a couple, Ranma ½, books for my eldest son. It’s awesome anime, check it out. We also used duct tape on one gift and labeled it, “From: Ghetto Santa“. What we’re going to hell for though, is having our youngest answer the phone when telemarketers called and having him ask them if they were Santa, because “Mommy said Santa was calling.” It worked like a charm though and we were all entertained hearing telemarketers squirm on speaker phone.
  

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I feel awful we didn’t all get in our suits before my mother and her boyfriend left but I’m planning on making some special fun dino video for him. FYI, the Kinect will not pick up inflatable T-Rex costumes in a small living room. When I make the video, you shall see it as well. I know I never posted my prednisone song but I never got it completely finished because of my migraines. I have not forgotten. I really need an alto though. I’m a first soprano and it’s so high pitched it doesn’t sound as funny as I want. I’ve been on prednisone twice since I last wrote. That’s always sunshine and rainbows. I stayed up for New Years. Not because I wanted to. It just kind of happened that way. I wasn’t really up for celebrating this year but the youngest was hell bent on staying up so we drank sparkling apple cider and watched movies. I mostly didn’t feel like celebrating because no matter how late I get to sleep, I wake up at 5 or 6am and am unable to go back to sleep so going to sleep at midnight seems like a waste. On other days like yesterday, I was up at 3am and don’t get back to sleep. The other reason I wasn’t feeling like celebrating was because we had group drama up until nearly midnight and falling asleep meant I could totally not deal with it. LOL! That’s totally not me though and I can’t sleep until I have everything taken care of. Seriously, it will keep me up…. And that’s why I stayed up.. Check that out, blog therapy.  Plus, I’ve done plenty of New Years partying I don’t feel like I’m missing anything. LOL!





On to venting……



I'm frustrated...no, I'm pissed. We'll go with pissed. So, like many of you, I'm losing my hair again. My new growth is about three inches long. The rest of my hair is nearly half way down my back. I have a lot of hair and it doesn't seem to fall out in patches, it's all over, so bonus. But, about half of it is new growth. If I lose it all, I have "bald lady goals" so while it's a big deal, it's also not. My skin is wicked dry but I drink between 64 to 128 oz of fluids a day. I never have to use lotion and I'm having to despite my home made body wash made with sensitive soap, lots of vitamin E, olive oil and such. I make it this way so I don't need lotion. I had to change from my home made shampoo to a sensitive, expensive shampoo and I’m scratching my head like I’m a head pet breeder. I laugh as I run to the mirror to check just in case because I have school aged kids. This is a legit concern and I've don't the RID comb with long hair. No thanks friends. I go from having a nicely brushed coif to scratching myself right into bed head in a matter of scalp bleeding seconds.This does not help my claim to sanity. My face itches just as bad. I look like a Meth head beginning withdrawals. 


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 The hair on my legs is growing really slow all of a sudden, not that that's a problem, it saves razors. lol! However, I went from having a five O’clock shadow on my ankles everyday after shaving in the morning to having to shave once a week. I mean, sweet but why? My legs look like alligator skin without lotion and I’m about to call PETA for protection from poachers.

Now, I apparently suffer from depression. Well, that was news to me. When my Rheumy told me I should see a therapist I thought it was protocol because of the disease. I had no idea he diagnosed me as having depression. I always smile when I see him, even when I'm in pain, unless it's unbearable. See, as a chronic pain patient and a chronic disease patient what's one of the first things they shove in your face? Antidepressants. I didn't want them but was told to take them so I do. That's the only reason I can think of that may cause him to think I have any sort of depression but I've seen him for over a year and he should know better. I mean, if he doesn’t know me at all by now, how can he effectively treat me? This is disheartening.

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And that's for my boys

 I've seen my new GP (internist) twice and he seems stuck on this whole depression thing. I told him about my symptoms and requested a thyroid panel. He admitted to me he didn't think my labs would come out abnormal... Ok.. could've been to make me feel better or for reassurance, I'll let that go. Fast-forward to my labs. TSH is normal. Free t-4 is normal. Free t-3 is 2.5 of a 2- 4.4 range. It's in the normal range but optimal (any good doctor should know optimal versus "normal") is at least the higher half of the range.  Being symptomatic with free t-3's at 2.5 requires further testing because it is the most important thyroid hormone given it is your active hormone and impacts your body on a cellular level. I get a call.... Doc says your labs are "normal". No! I need a reverse t-3, TPOab, TgAb for further evaluation. I know that a "normal" free t-4 with a borderline low normal free t-3 can mean the free t-4's are becoming reverse t-3's making a false normal. Your TSH goes through your pituitary but your T-4 to T-3 conversion does not
 so a normal TSH is NOT indicative of a healthy functioning thyroid. Just, it is good for everyone to know that.

Another factor here, is that my ESR is NEVER high. The highest it's been was 8 when I had a raging strep throat infection that was so bad we couldn't get rid of it for three months. We finally got rid of it by removing my tonsils. I catch hell about not having inflammation issues because of the "normal" ESR's but no one wonders why my ESR never rises. An ESR that never rises is abnormal. I currently have cartiodynia in my right artery, inflammation of the carotid artery, likely from the migraines, and my ESR is normal but my artery is measuring just over 50% narrowed. I'm 36. There is inflammation, it's not depression. 


Know your labs. Know what they mean and fight for what you need. I am so tired of babysitting doctors. I am so tired of having to prove things to doctors when I really shouldn't have to. Now I have to find a psychiatrist and get depression wiped from my records because I'm afraid doctors are using it as a way to write my symptoms off as being "psychosomatic" instead of taking them seriously. Also, everyone, depression can be a symptom of an underlying condition so people with depression deserve and require a full work up as well. It's crazy. Generally we require specialists to get help. I now need to find a specialist to prove another specialist is wrong and fix my records so people won't fixate on this one thing. In the words of Nancy Kerrigan, "Why me!?!"


When a doctor wrongly diagnoses you with a mental disorder (when that's not his specialty), then another doctor brings it up multiple times within two visits, questioning you like, "Are you sure you don't have depression?", then tells you he doesn't think your labs will reflect an abnormality, and then tells you the labs are normal when you know they require more investigating, there's no wonder why we end up wondering if we're crazy, hypochondriacs.

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I feel like I ought to bring one of my boys' rubber chickens to appointments and slap doctors with it when they misbehave. How would that police report sound? Patient slapped doctor with a rubber chicken over depression diagnosis. LOL! That would be a great headline but I value life; therefore, I need doctors so no going all Ninevite with rubber chickens. It doesn't mean I can't imagine it and giggle. Of course that may get me a whole other type of mental diagnosis. 

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UGH!!!! My head hurts. I'm gonna go vape me some CBD/THC hybrid, make some wholesome blueberry muffins with my little one, and get down to some Zumba in Club Michelle aka my living room. No, I won’t make you watch. It's quite disturbing. Hahaha! You guys have a great day! Stay amazing and be excellent to each other.

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