lupusfightermichelle

Greetings All!  Well, I'm trying various cocktails to see what will help with these migraines. I've spent special quality time with the toilet the last two days but I've been able to eat a little more (generally due to herbal assistance) so that's good I suppose. So far I've tried Imitrex with 600mgs of Ibuprofen because I've been told that can help. That's a negative so far. This morning I tried Imitrex with Tylenol and Benadryl. Doing ok. Not better but clearer than normal and less nauseous and dizzy. Bonus!! I had one last Butal left that I'd saved to instruct my cardio class yesterday so I may be in trouble for next week. Yesterday was a good class though!  I got cursed at a lot which means I was doing my job. I don't understand why they took that medication away. I took it according to the prescription. It was the only thing that let me function "normally" for any part of the day, not all day, but some. They claim Butal c...

Hello fellow Lupies and Lupie friends! I've been told that people want to help but they don't know how so they tend to keep their distance. I'd like to call bullshit on this. If you want to help and don't know what to do, ask, "Is there anything I can do?" The worst thing I can say is "Yes." And, here's the problem..... What if it is too cumbersome for me to handle. What if I can't do it? We're not toddlers. I'm an adult and "no" is a perfectly acceptable answer. The offer is enough because we just don't want to be forgotten and abandoned by those we care about. I don't have time to sit down and teach people how to help me medically. I already have to babysit doctors and try to take care of children. I don't want anyone coming into my messy house to help me clean it. I just want a message here and there and perhaps a nice scheduled visit where we can sit on the couch and chat after I cleaned the area we'll ...

Good Morning! Well all, it would appear that I have liquid in my ears. Or, at least I did. It seems to have drained but my ears still hurt. BAD! I've been complaining about this for four months and not one person caught fluid in the ears until now. Even still, no one thought, "Perhaps we should send her to ENT (Ear, Nose, and Throat doctor) since it's been this long". To make it more fun, they took away the only migraine medication that actually managed the pain somewhat. I suppose it's good that she took that medication away because if the issue is two of the four possibilities causing the ear pain, caffeine can trigger the ear pain or a flare up. This is so sad because I love coffee and Lupus is known for causing EXTREME fatigue. I could snort instant espresso crystals with my left finger and right nostril with my right arm hooked up to a coffee IV while sipping a nice big cup of freshly pressed dark roast coffee and have about 10 minutes of real energy ...

Hello everyone! It has been a crazy and wonderful couple days! My best friend/sister got here Friday and I haven’t seen her since 2012 when she came to help me for three weeks while my husband was gone because I was in the wheelchair. It has been amazing and we are all so happy because the kids LOVE their Aunty Jen too. It has been a blast since she got off the plane. Saturday was a BIG day. It was my youngest son’s birthday and my Raider’s day to put up and run the rope bridge and the JROTC repelling event. They both went great and I’m exhausted. I am still exhausted but it was totally worth it! My kids did a GREAT job running the rope bridge and at the end of taking all the JROTC kids through it, they got to repel down the short and tall towers. Afterward, my youngest had his 8th birthday party and since we had to give the entire class invitations, we decided to have the party at my gym instead of at home. It was unorthodox but fun and all of the children left tired.  ...

Good evening everyone!!! I hope everyone is doing well. I meant to write all week but the migraines have been for real lately and I was out of migraine meds for a while. I made a mistake and went to another marijuana dispensary and told them what I needed but they gave me something else because not all strains are the same and the dispensaries don’t all buy from the same growers. Also, they didn’t have a strain as strong as I needed so I’m not getting the relief I would be getting otherwise. I'll never go anywhere but 420 on Carpenter in Lacey, WA again. To make it more fun, when I picked up my migraine meds the pharmacist was concerned at my usage of Butal. It's the only thing letting me live and parent...somewhat. It's better than nothing and being high all the time. I can drive on it and I get about two to six hours of relief but it's always temporary and I end up requiring more. Until I can get to the neurologist, this is my life.  My brain MRI looked great. It’s ...

Greetings everyone! I hope everyone is doing well. I have been experiencing up’s and downs. I am almost over this cold so awesome! My “special” immune system has found it’s “baseball” and apparently it has found the joints in my hands, elbows, and shoulders as well. This is typical of lupus flares for me and unless I cannot use my hands, prednisone can suck it. I probably caught this cold because I was on prednisone just like I got that tooth infection that resulted in another tooth extraction in late July. Now, don’t get me wrong, prednisone is not Satan. I know his mistress. She works as a receptionist in my youngest son’s school district. Ironically her husband is a pastor. (No really, she’s pure evil hiding behind a pastor. It’s like hiding drugs in coffee grinds trying to prevent anyone from sniffing it out). Prednisone normalized my heart rate when I was nearly passing out and hallucinating in the grocery store…with my kids….trying to drive because I didn’t know what was goin...